Incontinentia Pigmenti (IP) is a genetic disease of the skin, hair, teeth and central nervous system. The condition was named because of the way the skin looks under the microscope. "Bloch-Sulzberger Syndrome" is another name commonly used for IP. Other names are: Bloch-Siemens Incontinentia Pigmenti, Melanoblastosis Cutis Linearis, and Pigmented Dermatosis Siemens-Bloch Type.
IPIF is a voluntary nonprofit organization founded in 1995.
It is guided by a Scientific Advisory Council, whose members are acknowledged experts in their fields. IPIF consists of patients, physicians, educators, parents, relatives, and volunteers who are striving to take leadership in supporting research, education, and funding. IPIF is a source of reliable information and support for patients and families in the United States and worldwide. Its mission is to encourage and support research on IP, and to provide family support and education.
IPIF cosponsors legislation affecting those with orphan disease.
Disclaimer: The Incontinentia Pigmenti International Foundation” (IPIF) does not
engage in the practice of medicine. It is not a medical authority nor
does it claim to have medical knowledge. This site is an educational
service of the “The Incontinentia Pigmenti International Foundation”
and is not meant to provide diagnostic or treatment advice.
Information contained or suggested on this Web site does not
constitute medical advice. For all information related to care,
medication or treatment, the IPIF recommends consulting a physician to
determine if information presented is applicable. Please review these
additional cautions about medical information provided.