Laura M Richter
President and CEO
30 East 72nd Street
New York, NY
78 Saint Moritz Dr
Erial, NJ 08081 U.S.A.
Tel: 212 452 1231
Fax: 212 452 1231
Susanne Bross Emmerich
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Incontinentia Pigmenti International Foundation
|The majority of IP patients have normal vision. Some problems, like near- and farsightedness,
are common in IP individuals, but these are probably no more frequent
than in the general population without IP. The classical eye finding in IP is an
abnormality in the growth of blood vessels in the inside of the eye (the retina).
Growth of abnormal blood vessels and the associated scarring can cause loss of
vision but may be treated if recognized early enough.
For this reason, babies diagnosed with IP should have an eye examination
immediately after birth and be followed by an ophthalmologist closely during the
first few years of life. Careful examination by a pediatric ophthalmologist or retinal
disease specialist should be done 3-4 times in the first year, then every 6 months
until age 4 years, then annually. Please go to Eye Examination of Children Affected
with IP for a detailed explanation of how to examine the eyes of an IP patient.
Rare eye abnormalities have included small eye (microphthalmos), cataract, and
degeneration of the optic nerve (optic atrophy). Permanent visual deficiency or total
blindness may occur.
Eye Examination of Children Affected with IP