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  Laura M Richter
  President and CEO
  30 East 72nd Street
  Suite 16
  New York, NY
  10021 U.S.A.

  Mailing Address:
  78 Saint Moritz Dr
  Erial, NJ 08081 U.S.A.

  Tel: 212 452 1231
  Fax: 212 452 1231
  Email: ipif@ipif.org

  Susanne Bross Emmerich
  Founder

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  Incontinentia Pigmenti International Foundation



THE BENEFITS OF IDENTIFYING THE GENE CALLED NEMO
It is a biological marker that produces a molecular diagnosis.

It becomes possible to do a prenatal test to determine if the fetus a woman is carrying has the gene which causes IP.

The mother of a baby born with IP can be tested to determine if she has the gene and has transmitted it to her fetus. This would give her information when considering additional pregnancies.

A basis for the further study of the various mutations of the gene to predetermine the level of severity.

A male fetus that was miscarried can be tested to determine if the cause was IP.

A woman can choose to have in-vitro fertilization. Pre implantation diagnosis (PGD) tests an embryo fertilized in a test tube for IP. The parents then have the choice of selecting embryos unaffected by the genetic condition.

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