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LINKS

SUPPORT

National Organization for Rare Disorders, Inc. (NORD)
www.rarediseases.org

The Ectodermal Dysplasia Society (in England, it's international)
www.ectodermaldysplasia.org

The National Foundation for Ectodermal Dysplasia (NFED)
http://www.nfed.org

IPIF on Facebook
https://www.facebook.com/IPFamilies

The French Support Group
Jacques Monnet, President
Home : +33 (0)4 78 35 96 32
Cell : +33 (0)6 07 91 34 67
www.incontinentiapigmenti.fr
https://www.facebook.com/pages/Incontinentia-Pigmenti/137858849629214

I.P.ASS.I Onlus , Incontinentia Pigmenti Italian Association
www.incontinentiapigmenti.it

The Genetic Alliance
www.geneticalliance.org

National Society of Genetic Counselors
www.nsgc.org

IP WORLD Community
https://www.facebook.com/groups/ipifIncontinentiaPigmenti/

EDUCATION

OMIM - Online Mendelian Inheritance in Man
http://omim.org/entry/308300

National Institutes of Health (NIH) for IP
http://www.ninds.nih.gov/disorders/incontinentia_pigmenti/
incontinentia_pigmenti.htm

PubMed - NIH
http://www.ncbi.nlm.nih.gov/pubmed?term=incontinentia%20pigmenti

IP and RARE AWARENESS

Rare Disease Day USA
http://rarediseaseday.us/

Rare Disease United Foundation
http://www.rarediseaseunited.org/

Global Genes Project Rare
http://globalgenes.org/

TESTING

Baylor College of Medicine DNA Laboratory
www.bcmgeneticlabs.org

Additional List Supplied by NIH
http://www.ncbi.nlm.nih.gov/gtr/tests/?term=Incontinentia+Pigmenti

GENOME

Human Genome Project Archive
http://web.ornl.gov/sci/techresources/Human_Genome/index.shtml

The National Human Genome Research Institute
www.genome.gov/

RESEARCH

Incontinentia Pigmenti Genetic Biobank
http://www.igb.cnr.it/ipgb


Disclaimer

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