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  Laura M Richter
  President and CEO
  30 East 72nd Street
  Suite 16
  New York, NY
  10021 U.S.A.

  Mailing Address:
  78 Saint Moritz Dr
  Erial, NJ 08081 U.S.A.

  Tel: 212 452 1231
  Fax: 212 452 1231
  Email: ipif@ipif.org

  Susanne Bross Emmerich
  Founder

  Join Us on Facebook
  Ipif IP Profile
  IP WORLD Community Group

  Incontinentia Pigmenti International Foundation



LINKS

SUPPORT

National Organization for Rare Disorders, Inc. (NORD)
www.rarediseases.org

The Ectodermal Dysplasia Society (in England, it's international)
www.ectodermaldysplasia.org

The National Foundation for Ectodermal Dysplasia (NFED)
http://www.nfed.org

IPIF on Facebook
https://www.facebook.com/IPFamilies

The French Support Group
Jacques Monnet, President
Home : +33 (0)4 78 35 96 32
Cell : +33 (0)6 07 91 34 67
www.incontinentiapigmenti.fr
https://www.facebook.com/pages/Incontinentia-Pigmenti/137858849629214

I.P.ASS.I Onlus , Incontinentia Pigmenti Italian Association
www.incontinentiapigmenti.it

The Genetic Alliance
www.geneticalliance.org

National Society of Genetic Counselors
www.nsgc.org

IP WORLD Community
https://www.facebook.com/groups/ipifIncontinentiaPigmenti/

EDUCATION

OMIM - Online Mendelian Inheritance in Man
http://omim.org/entry/308300

National Institutes of Health (NIH) for IP
http://www.ninds.nih.gov/disorders/incontinentia_pigmenti/
incontinentia_pigmenti.htm

PubMed - NIH
http://www.ncbi.nlm.nih.gov/pubmed?term=incontinentia%20pigmenti

IP and RARE AWARENESS

Rare Disease Day USA
http://rarediseaseday.us/

Rare Disease United Foundation
http://www.rarediseaseunited.org/

Global Genes Project Rare
http://globalgenes.org/

TESTING

Baylor College of Medicine DNA Laboratory
www.bcmgeneticlabs.org

Additional List Supplied by NIH
http://www.ncbi.nlm.nih.gov/gtr/tests/?term=Incontinentia+Pigmenti

GENOME

Human Genome Project Archive
http://web.ornl.gov/sci/techresources/Human_Genome/index.shtml

The National Human Genome Research Institute
www.genome.gov/

RESEARCH

Incontinentia Pigmenti Genetic Biobank
http://www.igb.cnr.it/ipgb


Disclaimer

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