The Ectodermal Dysplasia Society (in England, it's international) 
www.ectodermaldysplasia.org

Baylor College of Medicine DNA Laboratory 
www.bcmgeneticlabs.org

The French Support Group
Jacques Monnet, President
Home : +33 (0)4 78 35 96 32
Cell : +33 (0)6 07 91 34 67
www.incontinentiapigmenti.fr

The Genetic Alliance
www.geneticalliance.org

The National Foundation for Ectodermal Dysplasias (NFED)
http://www.nfed.org

National Institutes of Health (NIH) for IP.
www.ninds.nih.gov/disorders/incontinentia_pigmenti/.htm

National Organization for Rare Disorders, Inc. (NORD)
www.rarediseases.org

The National Human Genome Research Institute
www.genome.gov/

US Department of Energy Human Genome Project Information
www.ornl.gov/sci/techresources/Human_Genome/elsi/forensics.shtml

National Society of Genetic Counselors
www.nsgc.org